ci dessous il vous est proposé de participer à un questionnaire en ligne
WHAT WILL TAKING PART INVOLVE?
This study involves taking part in an online survey, so that we can find out more about:
- Your experiences of living with a rare or undiagnosed condition, or caring for somebody with a rare or undiagnosed condition, and particularly the emotional impact this has had.
- Your thoughts about accessing psychological and emotional support services.
- How you think things could be improved.
We think the survey will take around 20-30 minutes to complete, and will be completely anonymous. The survey will be open until Sunday 10 December.